Making the decision to seek hospice care.
In my estate planning and elder law practice I have had the good fortune to help many families make end-of-life decisions. In addition my mother and sister have been hospice volunteers for many years. They have given me the benefit of their experience. shared their experiences with me. Their helpful words have added to my own years of experience in helping families.
The decision to enter hospice care may be the difficult but once made it can be liberating for the ill family member as well as the caregiver. When you realize that medical treatment has gone as far as it can the patient and the family can take time to be together without the exhaustion which caregivers often experience.
Hospice is not a place or a group it is a stage in the care of a terminally ill person. It is a step toward a better quality of life as the end approaches. Patients and their loved ones can take comfort knowing that when modern medicine plays out and there is no more hope for a cure, it can still provide medication and treatment to help manage discomfort.
The quality of the terminally ill person’s last days are often improved through the extra time which family members can spend with them. The sensitive care and the support of a loving community can help the terminally ill patient and their family prepare to face the challenges ahead.
Medical care with the aim of relieving physical and emotional discomfort is known as palliative care. Once discomfort is taken out of the mix then the patient and the family can concentrate on the important business gaining closure.
Hospice care can, in some cases, be provided at the patient’s home. Home hospice care works best when family members are involved in the patient’s care. The focus is on allowing the patient to continue with as much of their regular life as is practical while maintaining proper medical care.
A hospice program can arrange for a primary caregiver to assist the patient so the family can be relieved of caregiver duty. If a family member decides to act as the primary caregiver then the hospice program can offer a respite or relief support so the caregiver can rest at intervals and still maintain a high level of patient care.
The hospice program will normally set up any equipment the patient needs and train the caregiver to properly give medications. The hospice program can arrange for nursing care if that level of skilled care is required. Nursing care may be required depending on the type of treatment the patient receives.
It is important that each family member be involved in the decision and that everyone, who is likely to visit, understands who the caregivers are and when each is responsible for care. A posted schedule can go a long way to making sure that one family member does not end up exhausted.
Thomas J. Olofsson, Attorney at Law, www.MyTrustLawyer.com
